{"id":5578,"date":"2011-03-05T19:44:09","date_gmt":"2011-03-05T18:44:09","guid":{"rendered":"http:\/\/www.ilmelanoma.com\/"},"modified":"2026-10-17T12:12:02","modified_gmt":"2026-10-17T11:12:02","slug":"melanomas-links","status":"publish","type":"page","link":"https:\/\/www.ilmelanoma.com\/en\/melanoma-resources\/melanomas-links\/","title":{"rendered":"Useful melanoma links: information, support and research"},"content":{"rendered":"<div class=\"im26-diagnosis-guide im26-care-guide\">\n<p class=\"im26-care-intro\">A selection by purpose, with audience, language and limitations.<\/p>\n<nav class=\"im26-dg-toc\" aria-label=\"On this page\"><strong>On this page<\/strong><\/p>\n<ol>\n<li><a href=\"#care-scegliere\">Start with the question, not the number of websites<\/a><\/li>\n<li><a href=\"#care-rischi\">Calculators, forums and images: important limits<\/a><\/li>\n<li><a href=\"#care-ricerca\">Using news and databases<\/a><\/li>\n<\/ol>\n<\/nav>\n<section class=\"im26-dg-section\" id=\"care-scegliere\">\n<h2>Start with the question, not the number of websites<\/h2>\n<p>Understanding a pathology report requires clinical explanations; requesting employment leave requires legislation and procedures; considering a trial requires a registry and participating centre. Combining these needs in one alphabetical list makes navigation difficult. The resources below serve different purposes and help identify the next useful step.<\/p>\n<p>Foreign organisations do not automatically describe Italian healthcare. Even reliable associations may offer services restricted to residents of a particular country. Confirm eligibility and contacts directly before sending medical documents. Inclusion here does not imply a commercial agreement, partnership or personalised medical assessment.<\/p>\n<div class=\"im26-dg-gallery im26-care-images\">\n<figure><a href=\"https:\/\/www.ilmelanoma.com\/wp-content\/uploads\/2009\/10\/melanoma-links-300x230.jpg\"><img loading=\"lazy\" src=\"https:\/\/www.ilmelanoma.com\/wp-content\/uploads\/2009\/10\/melanoma-links-300x230.jpg\" width=\"300\" height=\"230\" loading=\"lazy\" decoding=\"async\" alt=\"Image retained from the site archive.\"\/><\/a><figcaption>Image retained from the site archive.<\/figcaption><\/figure>\n<\/div>\n<p class=\"im26-dg-sources\"><small>Sources: <a href=\"https:\/\/www.aimac.it\/\">AIMaC \u2014 Associazione italiana malati di cancro<\/a>; <a href=\"https:\/\/www.ema.europa.eu\/en\/news\/new-clinical-trial-map-launched-eu\">EMA \u2014 Clinical trial map<\/a>.<\/small><\/p>\n<\/section>\n<section class=\"im26-dg-section\" id=\"care-rischi\">\n<h2>Calculators, forums and images: important limits<\/h2>\n<p>A risk calculator estimates probabilities in the populations for which it was developed; it cannot decide whether a spot is melanoma. A prognostic calculator cannot replace current staging and clinical assessment. Historical risk and prognosis tools that can no longer be verified are not re-presented as usable tests.<\/p>\n<p>Forums and personal accounts may reduce isolation, but experiences depend on stage, timing and treatment. A good outcome does not prove a product effective, and a difficult story does not predict your future. Avoid uploading identifiable photographs or complete reports to public spaces.<\/p>\n<p>Dermoscopy atlases and professional societies support clinical training. Comparing a home photograph with an atlas image cannot establish diagnosis. Self-examination helps identify change and prompt consultation, rather than assign a histological diagnosis.<\/p>\n<p class=\"im26-dg-sources\"><small>Sources: <a href=\"https:\/\/www.cancer.gov\/types\/skin\/moles-fact-sheet\">NCI \u2014 Common moles, dysplastic nevi and melanoma<\/a>; <a href=\"https:\/\/www.aad.org\/public\/fad\/digital-health\/apps\">AAD \u2014 Health and wellness apps<\/a>.<\/small><\/p>\n<\/section>\n<section class=\"im26-dg-section\" id=\"care-ricerca\">\n<h2>Using news and databases<\/h2>\n<p>PubMed helps locate publications but does not make every paper equally reliable. Read study design, sample size, comparator and clinical outcomes rather than only the title. A conference abstract may announce findings not yet fully published. A review may combine heterogeneous studies and have a literature search date earlier than publication.<\/p>\n<p>In trial registries, check country, site, recruitment status, eligibility and study contact. \u201cOngoing\u201d does not mean \u201copen to new participants\u201d, and registry information may lag behind a centre\u2019s change. Bringing the study identifier and questions to your oncologist is more useful than requesting an experimental drug without assessment.<\/p>\n<p>The historical directory included commercial sun-protective clothing websites, personal blogs and unavailable portals. The current selection prioritises identifiable organisations and separates information, support and training. Historical names are retained in the editorial archive without directing readers to domains that may have changed owner or content.<\/p>\n<p class=\"im26-dg-sources\"><small>Sources: <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/\">National Library of Medicine \u2014 PubMed<\/a>; <a href=\"https:\/\/www.ema.europa.eu\/en\/news\/new-clinical-trial-map-launched-eu\">EMA \u2014 Clinical trial map<\/a>.<\/small><\/p>\n<\/section>\n<section class=\"im26-dg-section\">\n<h2>Selected resources<\/h2>\n<div class=\"im26-resource-grid\">\n<article>\n<h3><a href=\"https:\/\/www.aimac.it\/\" rel=\"noopener\">AIMaC<\/a><\/h3>\n<p>Italian \u00b7 patients and carers. Booklets, rights and information points help prepare questions and find support; check service eligibility.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.inps.it\/it\/it\/inps-comunica\/notizie\/dettaglio-news-page.news.2025.05.malattie-oncologiche-guida-ai-diritti-e-alle-tutele.html\" rel=\"noopener\">INPS<\/a><\/h3>\n<p>Italian \u00b7 social protection. Institutional guidance should be read alongside subsequent legislation and the procedure for your province.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.iss.it\/snlg-consultazione\" rel=\"noopener\">ISS \/ SNLG<\/a><\/h3>\n<p>Italian \u00b7 professionals and experienced readers. Guideline catalogue with status and producer for checking the origin of recommendations.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.aiom.it\/linee-guida-aiom\/\" rel=\"noopener\">AIOM<\/a><\/h3>\n<p>Italian \u00b7 oncology. Access to guidelines and available versions; check the year of the individual document, not only the webpage.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.cancer.gov\/types\/skin\" rel=\"noopener\">National Cancer Institute<\/a><\/h3>\n<p>English \u00b7 patients and professionals. Melanoma, prevention and treatment information; choose the appropriate version and remember the US context.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/medlineplus.gov\/melanoma.html\" rel=\"noopener\">MedlinePlus<\/a><\/h3>\n<p>English \u00b7 general public. National Library of Medicine gateway to explanations and selected resources, useful as a starting point.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.aad.org\/public\/diseases\/skin-cancer\/check-skin\" rel=\"noopener\">AAD<\/a><\/h3>\n<p>English \u00b7 self-examination. Instructions and body map to notice change; they do not replace dermatological examination or dermoscopy.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.esmo.org\/\" rel=\"noopener\">ESMO<\/a><\/h3>\n<p>English and translated materials \u00b7 oncology. Professional guidance, patient information and meetings; check date and intended audience.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/eado.org\/\" rel=\"noopener\">EADO<\/a><\/h3>\n<p>English \u00b7 professionals. European dermato-oncology society offering education and scientific activities, not individual diagnosis.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/\" rel=\"noopener\">PubMed<\/a><\/h3>\n<p>English \u00b7 literature research. Search by author, title or topic; abstracts and indexing do not validate a conclusion.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/trialmap.ema.europa.eu\/\" rel=\"noopener\">EMA Trial Map<\/a><\/h3>\n<p>Multilingual \u00b7 EU\/EEA trials. Search melanoma and location, then confirm recruitment and eligibility with the centre; admission is not guaranteed.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/clinicaltrials.gov\/\" rel=\"noopener\">ClinicalTrials.gov<\/a><\/h3>\n<p>English \u00b7 international registry. Useful for identifiers and protocols, but registration proves neither effectiveness nor availability in Italy.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.ema.europa.eu\/en\/medicines\" rel=\"noopener\">EMA \u2014 Medicines<\/a><\/h3>\n<p>Multilingual \u00b7 medicines. Official European information and indications; Italian reimbursement requires a separate AIFA check.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.aifa.gov.it\/\" rel=\"noopener\">AIFA<\/a><\/h3>\n<p>Italian \u00b7 medicines in Italy. Check regulatory decisions and notices rather than inferring access from news of foreign approval.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK616232\/\" rel=\"noopener\">GeneReviews<\/a><\/h3>\n<p>English \u00b7 clinical genetics. CDKN2A information for counselling and surveillance; it is neither an online test nor an automatic investigation plan.<\/p>\n<\/article>\n<\/div>\n<\/section>\n<section class=\"im26-dg-sources im26-care-archive\">\n<details>\n<summary>Historical directory: retained names, not recommended links<\/summary>\n<p>Calcola il rischio di sviluppare un melanoma; Emily\u2019s Melanoma risk calculator; AIM at melanoma; AIMAC; American Association for Cancer Research; American Joint Committee on Cancer; American Society of Clinical Onchology; Cancer Care; Chart for Mapping Moles; Dermatoscopie; Dermoscopy Atlas; Dermatoscopy.ru; Euromelanoma: XI Campana Nacional deDiagn\u00f2stico Precoz de Melanoma 2010; European Association of Dermato-Oncology; Fondazione Veronesi; GenoMEL; Grupo Brasilero de Melanoma; IDS; Il melanoma cutaneo familiare; IMI; International Dermatoscopy Society; Irish Cancer Society (melanoma informations); Japanese Society for Pigment Research; Krebsliga Schweiz (Melanoma); Melanom.de; Melanom.net; Melanoma Center; Melanoma Institute Australia; Melanoma International Foundation; MMMP, Melanoma Molecular Map Project; Melanoma Network; Melanoma Patient&#x27;s Information Page; Melanoma prognosis; Melanoma Research Alliance; Melanoma Research Foundation:; MelNet; National Cancer Institute; Northern California Melanoma Center; Oncolink; Pubmed; Soci\u00e9t\u00e9 Canadienne du Cancer; Sunbed ban; Sun Protection Zone; Sun safety rules.com; The Melanoma Blog; The melanoma Foundation; Enciclopedia Treccani; Tutorial a cura di Medline plus; Ulman Cancer Fund for Young Adults; WHO Melanoma<\/p>\n<\/details>\n<\/section>\n<aside class=\"im26-dg-related\">\n<h2>Continue the pathway<\/h2>\n<div class=\"im26-resource-grid\">\n<article>\n<h3><a href=\"https:\/\/www.ilmelanoma.com\/en\/melanoma-resources\/melanoma-guidelines\/\">Melanoma guidelines: sources and versions<\/a><\/h3>\n<p>Where to consult authoritative recommendations and distinguish them from historical PDFs.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.ilmelanoma.com\/en\/melanoma-resources\/melanoma-apps\/\">Apps and melanoma: usefulness, limitations and privacy<\/a><\/h3>\n<p>Diaries and reminders may help; an automated result cannot rule out melanoma.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.ilmelanoma.com\/en\/melanoma-resources\/google-search\/\">Searching for melanoma information<\/a><\/h3>\n<p>Site search and scientific sources, with criteria for interpreting results.<\/p>\n<\/article>\n<article>\n<h3><a href=\"https:\/\/www.ilmelanoma.com\/en\/guides\/living\/\">Living with melanoma<\/a><\/h3>\n<p>Follow-up, rights and everyday life: a pathway for patients and those close to them.<\/p>\n<\/article>\n<\/div>\n<\/aside>\n<p class=\"im26-dg-sources\"><small>Editorial review and source consultation: 17 October 2026. Educational information, not individual healthcare or benefits advice. Source checking does not certify a new specialist clinical validation.<\/small><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>A selection by purpose, with audience, language and limitations.<\/p>\n","protected":false},"author":13,"featured_media":0,"parent":5532,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-5578","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Melanoma: web links<\/title>\n<meta name=\"description\" content=\"Links to melanoma websites and to dermoscopy websites\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ilmelanoma.com\/en\/melanoma-resources\/melanomas-links\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" 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